
Why do we need to talk about organ donation and death?
We have many tricky conversations with kids, from stanger danger to the birds and the bees, but one of the most important conversations falls to the bottom of the list, or is never brought up at all. Far from being a mood killer, these conversations save lives (literally).
Unlike other difficult topics, death is a certainty. Having these conversations, in a way that is age appropriate, equips kids to deal with death when it strikes. If the worst were to happen, talking together beforehand about your choices regarding organ donation and death significantly reduce the stress and grief experienced by those left behind.
Families that do have these conversations in advance report them being a source of comfort. Families who go on to donate their loved one’s organs often find this to be an additional source of consolation.
"I've always found it hard to talk about certain subjects with my kids, especially those related to death and organ donation. It's not an easy topic to broach, but it's a conversation that is so important to have. I struggled to find the right way to approach the subject until I discovered Orgamites. With their help, I was able to have an open and honest conversation with my kids about the importance of organ donation and how it can save lives.”
Glynn Gibb, dad of two kids
How to talk about it
As with other important topics, aim to have many small, light conversations rather than one big heavy conversation. Think of the first conversation as the first step in a long and winding journey.
Try to keep it upbeat! Children can be surprisingly accepting of life and death (especially if you are, too!). From the age of around 5 to 7, most kids have thought about the reality of death – perhaps their pet fish has died, or a grandparent, or they’ve wept for a movie character. Make sure they’re processing this dawning realization of life’s fragility and finiteness in the healthiest way possible.
Let them share their thoughts, fears, and questions. Really listen. It’s okay not to have all the answers, but just make sure you validate their feelings (whatever they may be).
What to talk about
Talk about the fact that life as we know it is precious. None of us know what tomorrow may bring and that’s why we should be grateful for every new day and the opportunities it brings with it for us to love and be loved. Let your kids know that you are okay with this reality – it’s part of what makes you be more present – and treasure every single day.
One day, when you pass on (hopefully in a very, very long time from now), what do you want them to remember most about you? Talk about this with them. Perhaps you also would like to share what you believe will happen when we die – depending on your religious or spiritual beliefs.
When our lives do eventually end, let them know about the various choices available – regarding organ donation and our remains. Perhaps this would be a good time to let them know what you have decided in both cases, and ask them if they have any questions or choices of their own.
For more information on how to start the organ donation conversation at home, including age-based recommendations, do’s and don’ts, and common reactions, download Toolkit #1 which includes a Family Resource to walk you through this conversation.
Canada’s Backstory
First launched in Canada in September 2021, the Orgamites program has already made waves across the country, receiving enthusiastic feedback from students, teachers, and parents alike. It has emerged as a vital platform for helping children understand how their bodies work, while sparking conversations about how they can make a positive difference in the world—starting with their own health and well-being.

